Our 10-month-old son, Keegan, recently had surgery to correct metopic craniosynostosis. We live in a rural area in eastern Oregon, where seeing a specialist is a three- to four-hour drive, especially in the winter time.
When we found out about Keegan’s diagnosis, we knew it would be hard to afford the many trips for medical care, plus the lost pay from time off work during his surgery and recovery. After some research I found Children’s Craniofacial Association, who helped us financially with travel, food and lodging. Also, their website has very helpful information and a list of certified care teams with experience in treating patients just like my son. Although I wasn’t able to use a specialist on the list, I was able to ask a few of the specialists about recommendations.
My son bounced back after surgery fairly fast and is doing very well. I am so relieved we got him the medical care he needed to prevent any future damage, and it would not have been feasible without the generosity of CCA. They really took a load of pressure off by helping out financially and having such an educational website to use as a reference, and one day I will be in a position where I can pay it forward.
Michael, Tiffany, Devin and Keegan