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Empowering and giving hope to individuals and families affected by facial differences

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We are extremely grateful and appreciative for the generous support you have offered our family to cover hotel expenses for upcoming trip...

    As we embark on this surgical journey once again, we know in our hearts and minds that we could not possibly give our daughter the best care without the financial and emotional support of family, friends and CCA. Your willingness to help means the world to us and allows us to concentrate on her recovery without the constant worry of financial issues. CCA truly carries out the mission of empowering and giving hope to families affected by facial differences and we are blessed to be a part of your family. ~ Alison


I wanted to thank you for the newsletter. It was so inspiring and I have made everyone I know read it. ~ Sherry


I’ve just finished reading your newsletter from front to back, thoroughly enjoying my connection with you all again. I just couldn’t let another month go by without thanking you. You’ve helped me become a better, more supportive mother. It’s nice to know we’re not alone! ~ Thora


Thank you so much for all of your help. I can hardly believe that there is an organization of people like you out there willing and able to help…and I am so grateful! I know that I am very fortunate to have read your recent newsletter, it was on the back of it where I saw that you might be able to help people who needed to travel for medical attention. I thank you from the bottom of my heart. ~ Leslie


The retreat has changed our lives for forever! ~ Mary


We just wanted to let you know that we had a great time at our first retreat and plan to return! The connections we felt with all of you were really special for John and I. For the past two years we’ve tried to network with other families, and the retreat has been by far the most rewarding experience for us. Thank you for sharing your stories and experiences; I know there are many more to come. We came home feeling positive and more “normal” (although I hate that word), and even Jylian has been in great spirits! Thanks again! ~ Kendall


I have been involved with CCA since I was three. My family and I have been to every retreat except one. CCA has been an important influence in my life. I grew up knowing there were kids like me. I’ve made many lifelong friends, and every year I make a couple more. I’ve also met the most amazing kids on the retreats. They are also why I want to be a nurse. CCA has helped me greatly growing up. I know that without them, I would not be the person I am today. ~ Amanda


Just wanted to let you know Lilli had a great time at the picnic. On the way home she told me "The people there acted like there wasn’t anything wrong with me. They acted like I was normal." She also said she feels a lot better about herself because of the way she was treated. I can’t thank you enough. She only has mild noticeable problems but when people are making you feel uncomfortable about looking different it doesn’t matter how different you look. It just hurts. I wish I had know about your group sooner but I am definitely thankful to have met you now! ~ Wanda


Right after my daughter was born, I was lost and trying to learn as much as I possibly could about her syndrome. The syndrome booklet on Apert syndrome on the CCA website was so much more informative than the scary print out I received at the hospital. I also went to the FAQ section and noticed people had asked the same questions I needed answers to. It was such a relief to know I wasn’t alone. ~ Lisa


13140 Coit Road • Suite 517 • Dallas, TX 75240  |  Toll-free 800.535.3643 • Phone 214.570.9099 • Fax 214.570.8811  |  Email

Children's Craniofacial Association
is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. CCA's mission is to empower and give hope to individuals and families affected by facial differences. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.

© 2016 Children's Craniofacial Association