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syndrome booklets
CCA has published eight in our series of 'A Guide to Understanding' booklets for parents, which explain craniofacial conditions and their treatment.  The booklets cover Apert Syndrome, Craniosynostosis, Crouzon Syndrome, Facial Palsy, Fibrous Dysplasia, Hemangiomas, Hemifacial Microsomia, Microtia, Moebius Syndrome, Pierre Robin Sequence and Treacher Collins Syndrome and are written in easy-to-understand text in question/answer format.

The CCA education booklets are available for download in Adobe Acrobat .PDF format for viewing.  If you don't have Adobe Acrobat you can click on the link below to download the reader.


A Guide to Understanding Apert Syndrome
©2005 Children’s Craniofacial Association, Dallas, TX

Spanish Version
A Guide to Understanding Cleft Lip and Palate
©2009 Children’s Craniofacial Association, Dallas, TX
A Guide to Understanding Craniosynostosis
Syndrome

©2005 Children’s Craniofacial Association, Dallas, TX
Spanish Version
A Guide to Understanding Crouzon Syndrome
©2005 Children’s Craniofacial Association, Dallas, TX
A Guide to Understanding Facial Palsy
©2005 Children’s Craniofacial Association, Dallas, TX
A Guide to Understanding Fibrous Dysplasia
©2005 Children’s Craniofacial Association, Dallas, TX
A Guide to Understanding Hemangiomas
©2006 Children’s Craniofacial Association, Dallas, TX
A Guide to Understanding Hemifacial Microsomia
©2005 Children’s Craniofacial Association, Dallas, TX
Spanish Version
A Guide to Understanding Microtia
©2007 Children’s Craniofacial Association, Dallas, TX
A Guide to Understanding Moebius Syndrome
©2006 Children’s Craniofacial Association, Dallas, TX
A Guide to Understanding Pfeiffer Syndrome
©2007 Children’s Craniofacial Association, Dallas, TX
Spanish Version
A Guide to Understanding Guide to Pierre Robin Sequence
©2008 Children’s Craniofacial Association, Dallas, TX
A Guide to Understanding Treacher Collins Syndrome
©2005 Children’s Craniofacial Association, Dallas, TX
Spanish Version
 
These booklets are intended for information purposes only . It is not a recommendation for treatment. Decisions for treatment should be based on mutual agreement with the craniofacial team. Possible complications should be discussed with the physician prior to and throughout treatment.

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services

Apert Syndrome

Carpenter Syndrome

Cleft Lip and/or Palate

Craniosynostosis

Crouzon Syndrome

Facial Cleft

Facial Palsy

Fibrous Dysplasia

Frontonasal Dysplasia

Hemangioma

Hemifacial Microsomia / Goldenhar Syndrome

Microtia/artresia

Miller Syndrome

Moebuis Syndrome

Nager Syndrome

Pfeiffer Syndrome

Pierre Robin Sequence

Saethre-Chotzen

Treacher Collins



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