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We have compiled the following list of website and organizational links for you.  If you have a link you would like to add or have found a link to be in error contact us at: webmaster@ccakids.com


link categories:

Family Support
Friends of CCA
Legislative
 

family support:

About Face
international: www.aboutfaceinternational.org
usa:www.aboutfaceusa.org
ACPA American Cleft Palate Craniofacial Association
www.acpa-cpf.org
Nancy Smythe
Angel Flight Southeast
ww.angelflightse.org
Angel Flight America
www.angelflightamerica.org
Apert
www.apert.org
Don & Cathie Sears
Child’s Health and Wellness Record
www.healthandwellnessrecord.com
Chromosome 18 Registry and Research Society
www.chromosome18.org
Gloria Ellwanger
Cleft Advocate
www.cleftadvocate.org
Debbie Oliver
Cleft & Craniofacial  Conditions
www.altacleft.ca
Patricia Bacon
Cleft Lip and Palate Foundation of Smiles
www.bigtent.com/groups/smiles2009
Rachel Mancuso
rachelmancuso09@comcast.net
Cleft Palate Foundation
www.cleftline.org
Craniofacial Foundation of Arizona
www.azcranio.com
Craniosynostosis & Parents  Support Group
www.cappskids.org
Forward Face
www.forwardface.org
317 E 34th Street   /  #901 A  / New York, NY  10016
Terri Brooks
212-684-5860
Foundation for Nager and Miller Syndromes
www.fnms.net
Friends of the National Institute of Dental and Craniofacial Research
www.fnidcr.org
Genetic Alliance
www.geneticalliance.org
Goldenhar Syndrome
www.goldenharsyndrome.org
Barbara Miles
Hemangioma
www.craniofacial.net
Hemifacial Microsomia /  Goldenhar Network
www.netnet.net/mums
Hope for Kids
www.hopeforkids.com
Joe DiMaggio Children's Hospital Craniofacial Program
www.jdch.com/Services/CleftandCraniofacialCenter.aspx
3435 Hayes Street
Hollywood, FL 33021
Program Coordinator - Bobby Brasher
ARNP Phone - 954-986-6314 Fax - 954-965-6427
bbrasher@mhs.net
Jorge Posada Foundation
www.jorgeposada.com
Lipman Creations - Cleft Books
 www.cleftbooks.biz
Loeys-Dietz Syndrome Foundation
Michigan Cleft Network  
Moebius Syndrome Foundation
www.moebiussyndrome.com
Monroe Orthotics & Prosthetics
www.monroeoandp.com

National Health Information Center
www.health.gov/nhic    

National Marfan Foundation
Operation Respect: Don't Laugh at me
www.dontlaugh.org
Operation Smile
www.operationsmile.org

Parry Romberg Foundation
www.parryrombergfoundation.org
Pfeiffer Syndrome Support Group
http://groups.google.com/group/pfeiffer-syndrome-support?lnk=srg&hl=en
Pierre Robin Network
www.pierrerobin.org
Nancy Barry
nancy@pierrerobin.org
Treacher Collins Connection
www.tcconnection.org
Judy Moesher

friends of cca:

cher convention
http://www.cherconvention.org
cher convention france
http://www.geocities.com/cher_convention/
katie's clothes
http://www.Katiesclothesbin.com
baby hands down post-surgery infant arm restraint system
www.BabyHandsDown.com

legislative:

Congress.org - Media Guide
http://congress.org/stickers/?dir=congressorg&media=1
United States House of Representatives Directory
 http://clerk.house.gov/members/index.html
United States Senate Directory
http://www.senate.gov/general/contact_information/senators_cfm.cfm



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