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Empowering and giving hope to individuals and families affected by facial differences
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Spanish Version, click here
Dramatically Increasing the Quality of Life with Prosthetic Devices
One-Sheet
Other:
A Parent’s Journey to Acceptance
Anthropology and Craniofacial Anomalies
Empowering Children to Cope with Teasing
Parents: You Are the Official Care Manager
What to Expect When Your Child Goes to Surgery
Webinars:
Caring for Children with Craniofacial Anomalies
Goldenhar syndrome/Hemifacial Microsomia:
Hemifacial Microsomia/Goldenhar Syndrome is a condition in which the lower half of one side of the face does not grow normally. The most obvious sign of this condition is a partially formed ear or total absence of an ear. In Goldenhar syndrome benign growths of the eye (epibulbar dermoids) are present. Children with Goldenhar syndrome may also have neck problems, which are most commonly caused by a fusion or bony bridges between the bones of the neck.
For more detailed information, please download our free booklet, A Guide to Understanding Hemifacial Microsomia.
Related Article(s):
Mother tries to bring awareness to craniofacial conditions
Golf Tournament Supports Children's Craniofacial Association
13140 Coit Road • Suite 517 • Dallas, TX 75240 | Toll-free 800.535.3643 • Phone 214.570.9099 • Fax 214.570.8811 | Email contactCCA@ccakids.com
Syndromes
Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. CCA's mission is to empower and give hope to individuals and families affected by facial differences. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
© 2013 Children's Craniofacial Association
