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Fibrous Dysplasia is a condition of the skeleton (bones). It is a birth defect that is a non-cancerous disease. It is not hereditary so your child did not get it from you nor will he/she pass it along to his/her children. Fibrous Dysplasia gets progressively worse from birth until the bones finish growing. As it progresses, normal bone is replaced by various amounts of structurally weak fibrous and osseous (bone-like) tissue.
For more detailed information, please download our free booklet, A Guide to Understanding Fibrous Dysplasia.
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Children's Craniofacial Association
is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. CCA's mission is to empower and give hope to individuals and families affected by facial differences. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
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