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Empowering and giving hope to individuals and families affected by facial differences
Downloadable files:
Spanish Version, click here
Tips on dealing with an External Distraction Device One-Sheet
Other:
A Parent’s Journey to Acceptance
Anthropology and Craniofacial Anomalies
Empowering Children to Cope with Teasing
Parents: You Are the Official Care Manager
What to Expect When Your Child Goes to Surgery
Webinars:
Caring for Children with Craniofacial Anomalies
Helping Your Child Cope with Teasing
Crouzon syndrome:
Crouzon syndrome is a condition in which sutures in the head are prematurely fused resulting in abnormal growth of the skull and face. Children with Crouzon's have bulging eyes due to abnormal growth of the mid-face. They may have a receding upper jaw and protruding lower jaw. They may have problems with teeth due to abnormal jaw growth.
For more detailed information, please download our free booklet, A Guide to Understanding Crouzon Syndrome.
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LH Today visits with April Gorman
13140 Coit Road • Suite 517 • Dallas, TX 75240 | Toll-free 800.535.3643 • Phone 214.570.9099 • Fax 214.570.8811 | Email contactCCA@ccakids.com
Syndromes
Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. CCA's mission is to empower and give hope to individuals and families affected by facial differences. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
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