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Empowering and giving hope to individuals and families affected by facial differences
Downloadable files:
Spanish Version, click here
Tips on dealing with an External Distraction Device One-Sheet
Other:
A Parent’s Journey to Acceptance
Anthropology and Craniofacial Anomalies
Empowering Children to Cope with Teasing
Parents: You Are the Official Care Manager
What to Expect When Your Child Goes to Surgery
Webinars:
Caring for Children with Craniofacial Anomalies
Apert syndrome:
Apert syndrome is a condition involving abnormal growth of the skull and the face due to early fusion of certain sutures of the skull. Children with Apert's have bulging eyes that are usually wide-set and tilted down at the sides. They usually have problems with teeth alignment due to the underdevelopment of the upper jaw. Some have cleft palate. Among other anomalies, children with Apert syndrome have webbed fingers and toes.
For more detailed information, please download our free booklet,
A Guide to Understanding Apert Syndrome.
Apert Web Page
This website does not belong to and is not controlled by Children's Craniofacial Association.
A delightful, full-service website maintained by Don and Cathy Sears
Don & Cathie Sears
PO Box 2571
Columbia, SC 29202
E-mail: catndon@apert.org
Related Article(s):
Surgery transforms Henry's face, health
On having Apert syndrome: An interview with my 5-year-old
Apert Hands BEFORE
Apert Hands AFTER
Apert Feet BEFORE
Apert Feet AFTER
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Syndromes
Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. CCA's mission is to empower and give hope to individuals and families affected by facial differences. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
© 2013 Children's Craniofacial Association
